Tuesday, October 27, 2009
Thursday, October 15, 2009
Monday, October 12, 2009
Update
Well it has been a long few weeks. Bryan is doing great! He is getting better and better at hearing, and it is wonderful to be able to talk to him like this again. He is learning to adapt to loud and soft environments. He goes for his next chemo this Friday and then only one more after that. Also he will have his next ear programming on Thursday. I took him to the dentist for his jaw the other day and turns out it is a damaged tooth, so he gets to have a root canal on thursday as well. Yuck! We had a meeting with his rehab last week, and they are going to try and keep him for as long as possible so he gets the full benefit which is great! Also we say the nuerologist and the ctscan showed no new activity which is good. He will have another one in 3 months. So over all Bryan is doing great.
We went to the pumpkin patch this last weekend with some friends of ours, and had a blast. Bryan got to watch Frank play and have a good time, which of course there is nothing better. The three of us are really enjoying our time together. It is great to have all this time together. We carved pumpkins that night, which was fun, although Frank fell asleep on us. He had a big day.
Unfortunately I have been in battle with insurance and all the benefits Bryan had through Brookshire's. Turns out we paid for things that really had no benefit to Bryan. Good advice to everyone ask for the fine print information to all benefits you are offered. Turns out Bryan will not recieve long term disability due to the policy Brookshires chose to take out. So we will only have social security, and of course we are having to pay all insurance out of pocket. So i had to go through all benefits and weed out some. Also i am taking Frank and i off our current insurance and finding more affordable insurance. It turns out that some of our coverages are actually cheaper individually than they were thhrough Brookshires for the exact same plan. So turned out good for some, but frustrates me that all this time we were paying more than we really had to. So as of right now we are waiting for social security to kick in, and Brookshires pay has stopped. But I think I have it all figured out and have all benefits lined out. Hopefully no more surprises will be thrown our way. All of this is just overwhelming, and frustrating. But we will get through it.
Other than all of that we are doing great. We have Bryans appointments this week, and then things slow down for a while. Thank goodness.
Thanks again for all the prayers and thoughts. We love all of you!
We went to the pumpkin patch this last weekend with some friends of ours, and had a blast. Bryan got to watch Frank play and have a good time, which of course there is nothing better. The three of us are really enjoying our time together. It is great to have all this time together. We carved pumpkins that night, which was fun, although Frank fell asleep on us. He had a big day.
Unfortunately I have been in battle with insurance and all the benefits Bryan had through Brookshire's. Turns out we paid for things that really had no benefit to Bryan. Good advice to everyone ask for the fine print information to all benefits you are offered. Turns out Bryan will not recieve long term disability due to the policy Brookshires chose to take out. So we will only have social security, and of course we are having to pay all insurance out of pocket. So i had to go through all benefits and weed out some. Also i am taking Frank and i off our current insurance and finding more affordable insurance. It turns out that some of our coverages are actually cheaper individually than they were thhrough Brookshires for the exact same plan. So turned out good for some, but frustrates me that all this time we were paying more than we really had to. So as of right now we are waiting for social security to kick in, and Brookshires pay has stopped. But I think I have it all figured out and have all benefits lined out. Hopefully no more surprises will be thrown our way. All of this is just overwhelming, and frustrating. But we will get through it.
Other than all of that we are doing great. We have Bryans appointments this week, and then things slow down for a while. Thank goodness.
Thanks again for all the prayers and thoughts. We love all of you!
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