Doctor time

Today Bryan will be going for his check ups. He seems to be doing wonderful to me! I will update later today with doctor reports!!

Bryan Driving

Today Bryan drove for the second time. He did really good. He seems to be getting more comfortable with it. Still more pratice needed, but off to a good start. I took a picture of him driving.

It has been awhile...

Life is busy. That is my only excuse for the lack of posting. Bryan is doing wonderful. He is just enjoying being home and getting to spend time with Frank and I. He went to his drs last month and everything looked great. They have him on one medication for the vasculitis and any stomach problems he might have. It is a two for one deal, which is great. So he will take this for the rest of his life as a precaution. Also he is trying a medication to help him sleep. He seems to not be able to sleep at night, and it is frustrating for him. So hopefully the medicine helps.

We just got finished celebrating Frank's birthdy and now are looking forward to the summer. Easter is coming up and last year Bryan was in the hospital during Easter. So this will be the first year to dye eggs with Frank. We are both looking forward to this. Also Bryan wants to go to some baseball games this summer, so we plan to do that. We signed Frank up for Blast ball this spring, and Bryan has enjoyed getting to get him his gear and pratice with him. Bryan is super excited to have the summer to do things with Frank he never got to do when he was working. He plans to spend alot of time at the lake with Frank and I, and just enjoying each other.

Hopefully next month we will see the ear doctor again, and they will reprogram his cochlear implant on last time. This is the big upgrade. Then it is possible they will start fighting insurance to get the other ear done. Hopefully it goes smoothly. He continues to work on the hearing. It gets better daily I think. I think the one thing that is still needing work is his balance, but i really think this summer going and doing things with Frank and chasing after him will help alot with this.

I will update more often I promise!

Update

I know it has been awhile since I updated. We are all doing well. Bryan had his last chemo treatment last Monday, which was exciting. Starting in December he will take a pill for 6 months. Then he will go off all meds and see what happens. Tomorrow he goes for another ear programming. He is hearing much better now, and continues to get better each day. It is stil hard to hear somethings, but much improvement.

He will go for a CT scan in December. The dr wants one done every three months. They do not intend to find anything but have to make sure. He is doing great as far as the illness.

We have been having a great time this fall playing outside and enjoying getting ready for the holidays. We already have the tree up and gifts wrapped. We are all looking forward to Christmas this year.

I will update hopefully later this week about the ear appointment.

A courage strains after the corpse.

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Update

Well it has been a long few weeks. Bryan is doing great! He is getting better and better at hearing, and it is wonderful to be able to talk to him like this again. He is learning to adapt to loud and soft environments. He goes for his next chemo this Friday and then only one more after that. Also he will have his next ear programming on Thursday. I took him to the dentist for his jaw the other day and turns out it is a damaged tooth, so he gets to have a root canal on thursday as well. Yuck! We had a meeting with his rehab last week, and they are going to try and keep him for as long as possible so he gets the full benefit which is great! Also we say the nuerologist and the ctscan showed no new activity which is good. He will have another one in 3 months. So over all Bryan is doing great.

We went to the pumpkin patch this last weekend with some friends of ours, and had a blast. Bryan got to watch Frank play and have a good time, which of course there is nothing better. The three of us are really enjoying our time together. It is great to have all this time together. We carved pumpkins that night, which was fun, although Frank fell asleep on us. He had a big day.

Unfortunately I have been in battle with insurance and all the benefits Bryan had through Brookshire's. Turns out we paid for things that really had no benefit to Bryan. Good advice to everyone ask for the fine print information to all benefits you are offered. Turns out Bryan will not recieve long term disability due to the policy Brookshires chose to take out. So we will only have social security, and of course we are having to pay all insurance out of pocket. So i had to go through all benefits and weed out some. Also i am taking Frank and i off our current insurance and finding more affordable insurance. It turns out that some of our coverages are actually cheaper individually than they were thhrough Brookshires for the exact same plan. So turned out good for some, but frustrates me that all this time we were paying more than we really had to. So as of right now we are waiting for social security to kick in, and Brookshires pay has stopped. But I think I have it all figured out and have all benefits lined out. Hopefully no more surprises will be thrown our way. All of this is just overwhelming, and frustrating. But we will get through it.

Other than all of that we are doing great. We have Bryans appointments this week, and then things slow down for a while. Thank goodness.

Thanks again for all the prayers and thoughts. We love all of you!