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Update

Well it has been a long few weeks. Bryan is doing great! He is getting better and better at hearing, and it is wonderful to be able to talk to him like this again. He is learning to adapt to loud and soft environments. He goes for his next chemo this Friday and then only one more after that. Also he will have his next ear programming on Thursday. I took him to the dentist for his jaw the other day and turns out it is a damaged tooth, so he gets to have a root canal on thursday as well. Yuck! We had a meeting with his rehab last week, and they are going to try and keep him for as long as possible so he gets the full benefit which is great! Also we say the nuerologist and the ctscan showed no new activity which is good. He will have another one in 3 months. So over all Bryan is doing great.

We went to the pumpkin patch this last weekend with some friends of ours, and had a blast. Bryan got to watch Frank play and have a good time, which of course there is nothing better. The three of us are really enjoying our time together. It is great to have all this time together. We carved pumpkins that night, which was fun, although Frank fell asleep on us. He had a big day.

Unfortunately I have been in battle with insurance and all the benefits Bryan had through Brookshire's. Turns out we paid for things that really had no benefit to Bryan. Good advice to everyone ask for the fine print information to all benefits you are offered. Turns out Bryan will not recieve long term disability due to the policy Brookshires chose to take out. So we will only have social security, and of course we are having to pay all insurance out of pocket. So i had to go through all benefits and weed out some. Also i am taking Frank and i off our current insurance and finding more affordable insurance. It turns out that some of our coverages are actually cheaper individually than they were thhrough Brookshires for the exact same plan. So turned out good for some, but frustrates me that all this time we were paying more than we really had to. So as of right now we are waiting for social security to kick in, and Brookshires pay has stopped. But I think I have it all figured out and have all benefits lined out. Hopefully no more surprises will be thrown our way. All of this is just overwhelming, and frustrating. But we will get through it.

Other than all of that we are doing great. We have Bryans appointments this week, and then things slow down for a while. Thank goodness.

Thanks again for all the prayers and thoughts. We love all of you!

Great News!

Bryan can hear!!! The implant is on and working. He still has to work on figuring out how to hear the tv, radio, and on the phone, but he can hear in person. It is awesome.. He was so excited to hear Frank!

Thanks for all the thoughts and prayers!

Great Weekend and First of week!

Well we are currently sitting in the hospital room waiting for the chemo treatment. I thought I would update on how the weekend went and last night went.

We had a blast on the trian ride. It was raining, but we still were able to enjoy the ride and the stockyard events. Frank loved the train! Bryan need absolutely wonderful walking around everywhere. It is great seeing him getting around so much better now.

Last night we had an awesome time at the Rangers game. We sat right behind Nolan Ryan. And we were so close to the field we could almost touch the players. Bryan was able to get autographs from Nolan Ryan which he loved. And his team won so that was good. The rain held off the whole game so we didn't get wet. It was a wonderful time. Thank you again Mrs. JoAnn for sending us the tickets. You are the best!

We saw the vasculitis dr this morning. He said everything looks good. The rash Bryan got was not due to the vasculitis it was allergic reaction. He thinks seafood caused it, so no more seafood for Bryan for a while. He said however that it is normal in the cooler weather to see the vasculitis rash often times. It is nothing alarming and doesn't mean anything will happen. So that is alot of relief to me. Bryan will go back next month and get another chemo and also a flu shot.

Also I am waiting for a call from the nuerologist to set up a ct scan. They can no longer due MRI 's because of the implant so this is the next best thing. It is just to make sure there is no new activity. And then he will have a follow up with that dr.

And as you can see by the ticker count down, Bryan will get his implant turned on on Sept. 22 which is next tuesday. So very exciting and he is ready.

I will post later this week with pictures and more info if I have any!!

Big week!

Well things are going pretty good. Bryan went to his first post op appointment last Wednesday. The dr said everything looked fine but he wants to leave the stitches in for another two weeks. When Bryan goes back to get the stitches out he will turn the implant on. This is a week early, so very exciting!!! However, Bryan had an allergic reaction to the glue that was used in surgery to put the gauze over the incision. So for over a week now he has been itching and dealing with the rash. It is slowly going away. Then on Thursday he produced another rash on his bady that itches that I believe is an allergic reaction to something he ate possibly. So Bryan has not felt well at all the last two weeks. He is slowly getting better and I believe he will be good to go back to Rehab on Monday. He has his next chemo on Tuesday morning, so hopefully that goes smoothly.

Also tomorrow we are going on a Train Ride in Grapevine. We are taking the grandparents and Frank. Frank is so excited and so are the grandparents. This will be the first time Frank and I have been on a train I know. We will be going from Grapevine to the Fort Worth Stockyards. It is going to be a blast. Then on Monday Bryan and I will be going to the Rangers Game, this is going to be so much fun. Bryan has been looking forward to this for awhile now.

So we have a busy week ahead of us and an exciting one.

I will post pictures from all events sometime next week, so be looking for them!